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23 signs you grew up with ehlers-danlos syndrome

23 Signs You Grew Up With Ehlers-Danlos Syndrome

Awareness of the Ehlers-Danlos Syndrome 

EDS is a group of genetic connective tissue disease marked by cellular fragility, external hyperextensibility, and joint excessive movement. Each person is affected slightly by this disease, and feelings can range from mild joint pain to severe mobility issues and organ complications. Learning to overcome these difficulties is part 23 signs you grew up with ehlers-danlos syndrome while striving for a fulfilling life.

Early Challenges and Adaptations

Early in life, injuries and medical treatments are common for many children with 23 signs you grew up with ehlers-danlos syndrome. Joint fractures and injuries can occur from simple activities like playing sports or playing with friends. As such, adopting a lifestyle that puts safety and self-care first becomes important. Protective measures that help manage symptoms and promote overall well-being include braces, physical therapy, and modified activities.

Educational Journey

There can be special difficulties when managing the educational system and controlling EDS. Personalized adjustments and help from instructors and school officials are necessary when fatigue, discomfort, and attention problems impact academic performance. Despite the difficulties, a lot of persons with EDS achieve in education. they face exhibiting perseverance and tenacity in achieving their objectives. 

Coming Up With EDS (Ehlers-Danlos Syndrome) 

The complexities of 23 signs you grew up with ehlers-danlos syndrome and the resolve of those who live with it glow as we explore 23 tips that suggest you may have grown up with the health problem. 


Joint hypermobility is one of the features of EDS. Growing up with EDS probably meant that your joints were extremely flexible and could bend in ways that were not believed to be healthy. 

Frequent Joint Dislocations

When someone has EDS, problems become a regular event in their life. Joint instability, whether it affects the finger, knee, or shoulder, can result in recurrent fractures that cause pain and interfere with day-to-day activities.

Chronic Pain

For many people with EDS, chronic pain is a reality. Simple tasks might become difficult due to continuous discomfort, which can range from joint pain to headaches and profoundly destroy everyday living. 

Easy Bruising

Those with EDS frequently damage easily due to the weakness of their blood vessels. Extensive bruising can arise from minor bumps or approaches, which can be quite uncomfortable. 

Skin Elasticity

The skin may become exceptionally weak and flexible as a result of EDS. If you have EDS, you might have observed as a child that your skin was more sensitive to breaking and infection than that of your classmates. 


For those with EDS, chronic exhaustion is a familiar companion. Even after getting enough sleep, people may still feel worn out, which makes it harder for them to go about their everyday lives. 

Digestive Issues

In people with EDS, digestive issues are common, including GERD and IBS (irritable bowel syndrome). Normal eating patterns may be disturbed and pain may result from these issues.

Orthostatic Intolerance

Orthostatic ignorance, a condition that causes feeling lightheaded, dizzy, or fainting while standing up, is common in people with EDS. With regard to mobility and independence, this symptom can be especially difficult. 

Sensitivity to Medications

People with EDS may be more sensitive to some drugs due to variations in the composition of protein. Selecting the appropriate course of treatment can be difficult and need ongoing review and modification. 

Delayed Wound Healing

Due to decreased production of collagen, injuries may heal more slowly in people with EDS. Complications and infections may become more likely as a result of this extending healing process.

Muscle Weakness

Even if they are flexible, people with EDS may have muscular weakness, which makes physical tasks more difficult. Strengthening and preserving muscle mass frequently calls for targeted exercise schedules and physical treatment. 

23 signs you grew up with ehlers-danlos syndrome

Dental Issues

Because their connective tissue is weaker, people with EDS are more likely to experience dental issues including gum disease and damage to their teeth. Maintaining oral health requires routine dental treatment and awareness.

Cardiovascular Complications

The heart root dilatation and mitral valve prolapse are two cardiovascular problems that can result from EDS impact on the physiology and anatomy of the heart and circulation. To manage these dangers, healthcare personnel must keep a close eye on their patients. 

Chronic Headaches

People with EDS frequently have regular migraines, including strokes. These headaches can have an impairing impact on one’s disposition, level of work, and general quality of life. 

Anxiety and Depression

Mental health could arise from having a chronic illness such as EDS. People with EDS frequently experience depression and anxiety as a result of the difficulties in controlling their symptoms and adjusting to variation. 

Sleep Disorders

People with EDS typically experience sleep difficulties, such as insomnia and apnea while sleeping. These problems have the potential to lead to hunger and affect general health. 

Temperature Regulation Issues

One of the most popular complaints from people with EDS is difficulty controlling body temperature. Particularly in really cold weather, they could sweat significantly or have difficulty getting comfortable. 

Vision Problems

Myopia, cataracts and even retinal detachment are among the visual issues that can result from 23 signs you grew up with ehlers-danlos syndrome impact on the anatomy of the eyes. For the early diagnosis and treatment of these conditions, routine eye exams are important. 

Scoliosis and Kyphosis

In people with EDS, spinal deformities such as the disorder (excessive curvature of the upper back) and the condition (sideways curvature of the spine) are more common. To stop the progression of these disorders and to treat the symptoms, orthopedic surgery may be necessary. 

Hypermobility-Related Injuries

Flexibility can be useful in some situations, but for people with EDS, it also raises their risk of injury. Muscle skeletal injuries such as sprains and strains are frequent and need to be carefully managed and receiving therapy. 

Feeding Difficulties in Infancy

Poor muscle tone and coordination in babies with EDS can make eating challenging for them. To guarantee appropriate nutrition and growth, experts in healthcare and specialized feeding methods could be needed. 

Developmental Delays

When it comes to attaining developmental goals like walking, crawling, and fine motor abilities, some people with EDS may have delays. Therapy and early treatment can encourage healthy development and help resolve these weaknesses. 

Empathy and Resilience

People who have grown up with EDS commonly grow up to be strong and very empathic despite the difficulties they experience. They recognize the value of working for themselves and others in the EDS society. 

In Conclusion

Many challenges, ranging from medical symptoms to mental difficulties, come with having Ehlers-Danlos syndrome as a kid. Those who are aware of the distinctive symptoms and 23 signs you grew up with ehlers-danlos syndrome can seek the right medical attention and assistance to properly manage their condition. Individuals impacted with EDS may steer their journey with courage and optimism for a better future by means of education, action, and community support. 

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